Carl Kapes Is Racing Against Time to Save His Children

Both of his sons have been diagnosed with a fatal disease. It's been an uphill battle, but there's a ray of hope.


Published:

Carl Kapes with his son Ryan.//Photo by Luis Javy Diaz

Carl Kapes calls it a death sentence.

His 2-year-old son Ryan was lagging behind the other children at day care. He received treatment for chronic ear infections and underwent speech therapy, but something still wasn’t right.

“He was kind of behind that curve,” Kapes says. “We knew something was off.”

Doctors tested for ADHD and autism, but remained mystified.

In the meantime, Kapes and his wife had their second son, Brayden.

Doctors finally decided Ryan should undergo genetic testing. 

“They said, ‘We’re looking for Sanfilippo syndrome, but don’t look it up. You’ll drive yourself nuts,’” Kapes says. “Of course, I looked it up. I was thinking, All right, this is the worst-case scenario. Whatever it is, we’ll deal with it.”

Then the diagnosis came back. Indeed, it was Sanfilippo—a rare and fatal genetic disorder that gradually causes children to lose the ability to speak, walk and eat. It affects one in every 70,000 births.

The syndrome, discovered by Dr. Sylvester Sanfilippo in 1963, is an autosomal recessive hereditary disorder, which means both parents carry the gene.

Normally, the human body uses sugar molecules to build connective tissues. When the body is finished with those molecules, it uses enzymes to break them down and dispose of them. Children with Sanfilippo syndrome do not have the enzymes that break down the molecules, so the body stores the molecules in cells, causing progressive damage.

When they are born, children with Sanfilippo show no signs of the disorder and appear normal. Then they begin to develop behavioral issues and lag behind their peers. As the syndrome progresses, the children become restless, experience sleep disturbances and often exhibit difficult behavior.

Eventually, they lose language skills, have trouble walking and then lose that ability altogether. Other symptoms include slowed growth, hearing loss, vision impairment, seizures and partial paralysis.

At the time of Ryan’s diagnosis—2009—there was no treatment or cure.

“It was devastating to hear that,” Kapes says. “And the fact that it’s genetic, that my other son could have it...”

So Brayden was tested. It came back positive.

“When the testing came back for him ... you’re at rock bottom,” Kapes says. “You don’t get any lower than that.”

Doctors told Kapes that his children would probably live to be 12 to 15 years old and to “enjoy them while you have them.”

Says Kapes, “I can’t even begin to describe how devastating it is to be told your children will die and there is nothing you can do.”

Brayden Kapes//Photo by Luis Javy Diaz

Moving mountains

Kapes, 41, of Wilmington, couldn’t sit idle and watch his children perish. There was one thing he knew he could do—raise money for research to develop a cure.

He reached out to other like-minded Sanfilippo parents and they formed the nonprofit Team Sanfilippo Foundation in 2010 to raise awareness and funding.

“At that point,” says Kapes, “I thought, OK. We can’t save our kids, but if we can save another family from having to go through this awful process, then we’re doing it.”

Kapes has spent the past seven years organizing dozens of fundraisers such as guest bartender nights, golf outings and run/walks.

In 2012, he climbed Mount Kilimanjaro, the tallest mountain in Africa, to inspire people to donate to the cause. The climb raised about $100,000 through the Team Sanfilippo website. The resulting publicity also helped spread the word about Sanfilippo. Kapes estimates the foundation has raised more than $1 million so far.

The first step toward helping Ryan and Brayden was entering them into a natural history study [a study that follows a group of people over time who have a specific medical condition] in Minnesota through a company named Shire. The biotechnology company focuses on treating patients with rare diseases.

Shire was developing an enzyme replacement therapy, but limited its clinical trials to 4-year-olds and younger, so Kapes’ sons didn’t qualify.

“I understand the reasoning behind it,” he says. “These companies are putting a lot of money into this and they want to come out with a viable product that they can market. There’s a business behind it, so they’re looking for the best candidates that can show the best improvement.”

Kapes didn’t give up hope.

After the Kilimanjaro climb, Team Sanfilippo president Kathy Buckley met Tim Miller, who has a Ph.D. in pharmacology with a focus on gene therapy. Miller was in the process of starting his own pharmaceutical company and knew people who were conducting gene therapy research to treat Sanfilippo at Nationwide Children’s Hospital in Columbus, Ohio.

The situation looked promising. Team Sanfilippo and other similar foundations pooled their money to help fund Miller’s new company, Abeona Therapeutics.

A drug was developed over the next several years and Abeona started producing it in September 2015. The U.S. Food and Drug Administration approved a clinical trial last spring and the first Sanfilippo child was treated in May. 

“We’ve treated three patients and the data from the first two patients is very positive,” Miller said in early September. “Now we’re seeing positive signals that would indicate biopotency, which means that the drug got in and it’s doing its thing to break down the sugars that the kids have a problem breaking down. And we’re hoping to see longer-term benefits as the trial continues.”

Against the wall

Kapes says the trial will treat six to nine children, but he estimates there are at least 100 children who need the gene therapy to save their lives. 

In March 2015, Kapes received a call telling him Brayden had qualified for the upcoming clinical trial. The bad news, doctors said, was that Ryan tested positive for an antibody that would render the treatment ineffective and he wasn’t eligible.

“A second death sentence,” Kapes says. “We went from the joy of news about Brayden’s eligibility to utter devastation about Ryan in a matter of 30 seconds.”

Once again, Kapes and his family faced a mountain. He considered giving up.

“I decided we all have come too far to not give every single one of our children suffering this disease a chance to receive treatment,” he says. “Unfortunately, it is mostly money now that stands between death and saving these children’s lives. Based on the kids’ age, we are in a race against time.”

Ryan is now 11 and Brayden is 8. Both require round-the-clock care. Because of Sanfilippo, they can’t be potty-trained, so they need to be changed, bathed and fed.

“They get to a plateau when they’re 5 or 6 and then they start regressing,” Kapes says. “It’s like having a 1- to 2-year old.”

While Brayden can still run and play, Ryan’s condition has regressed to the point where he struggles to walk on his own.

If Ryan doesn’t receive treatment, the progressive disease will continue to break down his mind and body. In August, he began having seizures and could not sleep through the night.

“Ryan’s having a lot of problems,” Kapes says. “We don’t know what’s bothering him because he can’t tell you.”

Kapes says Sanfilippo children around Ryan’s age receive feeding tubes because they lose the ability to swallow.

“He’s not there yet,” Kapes says. “We’re kind of fighting it off. We’re taking the approach that the longer we can keep him moving, the longer he’ll move. When the kids start to get wheelchair-bound, that’s when things start to backslide.”

Still, Ryan is experiencing some quality of life. He recently graduated from a fifth-grade special education class at Hanby Elementary School.

Kapes expects to know whether his children will receive gene therapy by the end of the year. He recognizes that the window is quickly closing.

“We’re teetering on the edge of keeping them as healthy and as strong as possible, but once the disease progresses so far, the kids can’t go through the tests and the things they need to do to get treated,” Kapes says.

So he’ll continue his fight. Joined by Miller, a photographer and local radio station personalities, Kapes climbed Mount Rainier in Washington in September. He will continue to raise money with the hope that the clinical trial will be expanded so that children with antibodies can also receive treatment.

“We’re at the end, especially for Ryan,” Kapes says. “This is either going to work for him or we’re going to have to just enjoy the rest of what we have with him.”

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Wilmington, DE  19807
View map »


Telephone: 800-448-3883
Contact Name: Information and Tours
Website »

More information

Forgeries—false works claiming to be genuine—aren’t expected to have much worth. As such, it may be surprising to learn that items once deemed worthless frauds and illegal acts can serve as...

Cost: Free

Where:
University of Delaware's Morris Library
181 S. College Ave.
Special Collections Gallery
Newark, DE  19717
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

Husband and wife painters, Kirk McBride and Lynne Lockhart exhibit over 40 new paintings in a two-person show. Lynne is known for her expressive yet anatomically accurate oil paintings of animals...

Cost: free

Where:
The Station Gallery
3922 Kennett Pike
Greenville, DE  19807
View map »


Telephone: 302-654-8638
Website »

More information

The Delaware Art Museum commissioned a project by New York-based artist Hank Willis Thomas which explores identity, history, and the actions motivating contemporary society. Thomas will interpret...

Cost: Free with Museum admission.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
View map »


Website »

More information

In 2017, the Delaware Art Museum received 13 works of art previously on display in the Hotel du Pont in downtown Wilmington. The gift included watercolors by Andrew Wyeth and oil paintings by N.C....

Cost: Free for members; Included in Museum Admission charge for non-members.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilminton, DE  19806
View map »

More information

A needle's eye in a pond, a Greek temple in the garden, an Ottoman tent sitting on a hill—these are just a few of the inspirations for our upcoming, first-ever outdoor exhibition Follies:...

Cost: Included with general admission ($5-20)

Where:
Winterthur Museum, Garden & Library
5105 Kennett Pike
Wilmington, DE  19807
View map »


Sponsor: Winterthur Museum, Garden & Library
Telephone: 800.448.3883
Contact Name: Information and Tours
Website »

More information

The intimate vision of each artist—a mingling of reality and invention—blends the natural world with abstract shapes. Whether in luminous or subdued colors, these forms conjure up a cityscape...

Cost: Free with Museum admission.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19350
View map »


Website »

More information

Schedule a private group tour followed by lunch or dinner with a historic, revolutionary war era presentation.* Ideal for conferences, corporate meetings, special interest groups. $25 per...

Cost: $25–$45

Where:
The University and Whist Club
805 N Broom St
Wilmington, DE  19806
View map »


Sponsor: The University and Whist Club
Telephone: 302-658-5125
Contact Name: Stacey Inglis
Website »

More information

FREE COMMUNITY EVENT: MID-WEEK WORD REFRESHER Come join us at the Mid-Week Word Refresher every Wednesday at Faith Victory Christian Center from 11:00am - 12:00pm. Refreshments will be...

Cost: FREE

Where:
Faith Victory Christian Center
301 Commonwealth Avenue
Claymont, DE  19703
View map »


Sponsor: Faith Victory Christian Center
Telephone: 302.354.6726
Contact Name: Alvin Walker
Website »

More information

Eleganza Luncheon & Fashion Show Wednesday, September 26 11:00 AM – 2:00 PM Join us for our annual luncheon and fashion show, presented by the Ministry of Caring Guild and benefiting...

Cost: Contact Office

Where:
Hotel DuPont
42 W 11th St.
Wilmington, DE  19801
View map »


Sponsor: Ministry of Caring Guild
Telephone: 302-652-5523
Contact Name: Cindy Gamble
Website »

More information

Since the early 20th century, abstract art has prompted audiences to consider how the materials, shapes and subjects found within an artwork form the viewer’s response to it. Abstract art...

Cost: Free

Where:
University of Delaware's Mechanical Hall
30 North College Ave.
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

In recent years, the Arctic has occupied a central place in urgent climate change discussions. However, the Indigenous peoples of the region have long understood the need to respect an...

Cost: Free

Where:
Old College Gallery
18 East Main St.
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

Self-educated mineralogist George F. Kunz assembled several renowned mineral collections throughout his lifetime. This exhibition highlights the last of his assembled collections, purchased by...

Cost: Free

Where:
University of Delaware's Mineralogical Museum
225 Academy Street
Penny Hall
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

MAB offers high quality and affordable ballet training for ages 4 - 18 and Adult Ballet.  MAB is now offering classes in Tap and Jazz.  Classes begin Tuesday, September 4, 2018.   For more...

Cost: see website

Where:
Mid Atlantic Ballet
506 Interchange Blvd
Middletown, DE  19711
View map »


Sponsor: Mid Atlantic Ballet
Telephone: 302-266-6362
Website »

More information

LURAY PRODUCTIONS NEW YEARS EVE Monday, December 31, 2018            7:30 PM - Midnight Minquadale Memorial Hall 129 East...

Cost: 70-80

Where:
Minquadale Memorial Hall
129 East Hazeldell Avenue
New Castle, DE  19720
View map »


Sponsor: Luray Productions
Telephone: 302-559-0607
Contact Name: Lois Lipton Parker
Website »

More information

Join us on The Patio, voted Best Outdoor Dining by Delaware Today readers! Happy hour 4PM - 6:30PM, live entertainment 6PM - 9PM, local craft beer, handcrafted cocktails, creative gastropub menu,...

Cost: menu items vary

Where:
Hilton Christiana
100 Continental Dr.
Newark, DE  19713
View map »

More information

Visit the former dairy and farm while exploring the ever-changing estate landscape on this narrated tram tour. Hear accounts of estate history as you see how we have repurposed historic work areas....

Cost: $5 per person upgrade. Members free.

Where:
Winterthur Museum, Garden & Library
5105 Kennett Pike
Wilmington, DE  19807
View map »


Telephone: 800-448-3883
Contact Name: Information and Tours
Website »

More information

NEW DATE: Wednesday, September 26 | 5:30 p.m. – 8:00 p.m.Location: Kingswood Community Center In partnership with Network Delaware, the Museum will present a Town Hall discussion on the...

Cost: Free

Where:
Kingswood Community Center
2300 Bowers St.
Wilmington, DE  19802
View map »


Website »

More information

Timothy Barr paints with a heightened sense of the relationship between color and light, infusing natural images with a serene and meditative radiance. He creates fine oil paintings of the colorful...

Cost: free

Where:
Somerville Manning Gallery
Breck’s Mill, 2nd Floor
101 Stone Block Row
Greenville, DE  19807
View map »


Telephone: 302-652-0271
Contact Name: Rebecca Moore
Website »

More information

Take in the elegant sunsets aboard the Riverboat Queen on our Thursday Sunset Dinner Cruises! Start your weekend early dockside with this delicious BBQ on the River buffet, featuring options to...

Cost: $45 Adults $22.50 Children ages 3-12 Children under 3 FREE

Where:
Public Docks
Behind Iron Hill Brewery
Wilmington, DE  19801
View map »

More information

Clearing the mind and learning to think not thinking is Zen awareness. Taking the appropriate action in this moment is Zen. Once you know this in your body, walking, standing, sitting down,...

Cost: Free

Where:
Unitarian Universalist Fellowship of Newark
420 Willa Road
Newark, DE  19711
View map »


Sponsor: UUFN
Telephone: 302.368.2984
Contact Name: Richard Field
Website »

More information

View the new exhibition “The World Is Following Its People: Indigenous Art and Arctic Ecology and meet several of the UD students who helped bring it to life as curators. This reception...

Cost: Free

Where:
University of Delaware's Old College Gallery
18 East Main St.
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

By Peter Shaffer Directed by Steve Tague. Enlarge! Enliven! Enlighten! Lettice is a vivacious tour guide at a rather ho-hum historical manor, who grabs and keeps tourists’ attention with...

Cost: 15-32

Where:
Studio Theatre, Roselle Center for the Arts
110 Orchard Rd.
Newark, DE  19716
View map »


Telephone: 302-831-2204
Website »

More information

Show More...
Show Less...

Established Color, an exhibition of vibrant still life paintings by Thomas Del Porte, will be on view in the Mezzanine Gallery from September 7-28, 2018. Del Porte received a 2018 Fellowship in...

Cost: Free

Where:
Mezzanine Gallery in Carvel Building
820 N. French St.
2nd Floor
Wilmington, DE  19801
View map »


Sponsor: Delaware Division of the Arts
Telephone: 302-577-8278
Contact Name: Roxanne Stanulis
Website »

More information

We’re very excited that it’s almost time for our 12th Annual Delaware FFA Foundation, Inc.’s Golf Tournament ! This year the tournament will take place on Thursday, September...

Cost: 450

Where:
Heritage Shores Club
1 Heritage Shores Circle
Bridgeville, DE  19933
View map »


Sponsor: Delaware FFA Foundation
Telephone: 302-245-7882
Contact Name: Justin Bailey
Website »

More information

Have you ever pondered the genius behind the invention of the s’more, or wondered how anyone could survive a camping trip without bug spray and quick-dry fabrics?  Happy Campers! has answers for...

Cost: members free, included with admission

Where:
Winterthur Museum, Garden & Library
5105 Kennet Pike
Wilmington, DE  19807
View map »


Telephone: 800-448-3883
Contact Name: Information and Tours
Website »

More information

Husband and wife painters, Kirk McBride and Lynne Lockhart exhibit over 40 new paintings in a two-person show. Lynne is known for her expressive yet anatomically accurate oil paintings of animals...

Cost: free

Where:
The Station Gallery
3922 Kennett Pike
Greenville, DE  19807
View map »


Telephone: 302-654-8638
Website »

More information

Forgeries—false works claiming to be genuine—aren’t expected to have much worth. As such, it may be surprising to learn that items once deemed worthless frauds and illegal acts can serve as...

Cost: Free

Where:
University of Delaware's Morris Library
181 S. College Ave.
Special Collections Gallery
Newark, DE  19717
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

Try practicing yoga in a beautiful garden setting, strengthening your body and spirit. Our yoga class is open to all levels. We will practice slow, easy motions to get into the rhythm of nature....

Cost: $10

Where:
Winterthur Museum, Garden & Library
5105 Kennett Pike
Wilmington, DE  19807
View map »


Sponsor: Winterthur Museum, Garden & Library
Telephone: 800-448-3883
Contact Name: Information and Tours
Website »

More information

The Delaware Art Museum commissioned a project by New York-based artist Hank Willis Thomas which explores identity, history, and the actions motivating contemporary society. Thomas will interpret...

Cost: Free with Museum admission.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
View map »


Website »

More information

The intimate vision of each artist—a mingling of reality and invention—blends the natural world with abstract shapes. Whether in luminous or subdued colors, these forms conjure up a cityscape...

Cost: Free with Museum admission.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19350
View map »


Website »

More information

In 2017, the Delaware Art Museum received 13 works of art previously on display in the Hotel du Pont in downtown Wilmington. The gift included watercolors by Andrew Wyeth and oil paintings by N.C....

Cost: Free for members; Included in Museum Admission charge for non-members.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilminton, DE  19806
View map »

More information

A needle's eye in a pond, a Greek temple in the garden, an Ottoman tent sitting on a hill—these are just a few of the inspirations for our upcoming, first-ever outdoor exhibition Follies:...

Cost: Included with general admission ($5-20)

Where:
Winterthur Museum, Garden & Library
5105 Kennett Pike
Wilmington, DE  19807
View map »


Sponsor: Winterthur Museum, Garden & Library
Telephone: 800.448.3883
Contact Name: Information and Tours
Website »

More information

Story Time Thursdays 10:30 - 11 a.m. Enjoy fun animal stories read by our own zoo story-telling team! Story time takes place in the otter circle, in the main zoo, and may include a craft,...

Cost: $7 - $0

Where:
Brandywine Zoo
1001 North Park Drive
Wilmington, DE  19802
View map »


Telephone: 302-571-7747
Website »

More information

Get lost in a book during Mt. Cuba’s Story Time in the Gardens. Children are invited to visit the gardens on Thursday mornings for a story from a nature-themed children’s book. Intended for...

Cost: General Admission

Where:
Mt. Cuba Center
3120 Barley Mill Rd.
Hockessin, DE  19707
View map »


Sponsor: Mt. Cuba Center
Telephone: 302-239-8883
Contact Name: Sara Stevenson
Website »

More information

Schedule a private group tour followed by lunch or dinner with a historic, revolutionary war era presentation.* Ideal for conferences, corporate meetings, special interest groups. $25 per...

Cost: $25–$45

Where:
The University and Whist Club
805 N Broom St
Wilmington, DE  19806
View map »


Sponsor: The University and Whist Club
Telephone: 302-658-5125
Contact Name: Stacey Inglis
Website »

More information

In recent years, the Arctic has occupied a central place in urgent climate change discussions. However, the Indigenous peoples of the region have long understood the need to respect an...

Cost: Free

Where:
Old College Gallery
18 East Main St.
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

Self-educated mineralogist George F. Kunz assembled several renowned mineral collections throughout his lifetime. This exhibition highlights the last of his assembled collections, purchased by...

Cost: Free

Where:
University of Delaware's Mineralogical Museum
225 Academy Street
Penny Hall
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

Since the early 20th century, abstract art has prompted audiences to consider how the materials, shapes and subjects found within an artwork form the viewer’s response to it. Abstract art...

Cost: Free

Where:
University of Delaware's Mechanical Hall
30 North College Ave.
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

MAB offers high quality and affordable ballet training for ages 4 - 18 and Adult Ballet.  MAB is now offering classes in Tap and Jazz.  Classes begin Tuesday, September 4, 2018.   For more...

Cost: see website

Where:
Mid Atlantic Ballet
506 Interchange Blvd
Middletown, DE  19711
View map »


Sponsor: Mid Atlantic Ballet
Telephone: 302-266-6362
Website »

More information

The Farm Stand is located in front of the Museum Store at the Cottage on Thursdays, July–September, 1:30–5:30 pm. Visit us to select fresh, local produce. Parking is available behind the...

Cost: free

Where:
Winterthur Museum, Garden & Library
5105 Kennett Pike
Wilmington, DE  19807
View map »


Telephone: 800-448-3883
Contact Name: Information and Tours
Website »

More information

LURAY PRODUCTIONS NEW YEARS EVE Monday, December 31, 2018            7:30 PM - Midnight Minquadale Memorial Hall 129 East...

Cost: 70-80

Where:
Minquadale Memorial Hall
129 East Hazeldell Avenue
New Castle, DE  19720
View map »


Sponsor: Luray Productions
Telephone: 302-559-0607
Contact Name: Lois Lipton Parker
Website »

More information

Join us on The Patio, voted Best Outdoor Dining by Delaware Today readers! Happy hour 4PM - 6:30PM, live entertainment 6PM - 9PM, local craft beer, handcrafted cocktails, creative gastropub menu,...

Cost: menu items vary

Where:
Hilton Christiana
100 Continental Dr.
Newark, DE  19713
View map »

More information

By Conor McPherson Directed by Ben Barnes  “Sharky” Harkin has returned to Dublin to gather with his brother and friends for a whisky-soaked Christmas Eve of companionship and poker.  When...

Cost: 15-32

Where:
Thompson Theatre, Roselle Center for the Arts
110 Orchard Rd.
Newark, DE  19716
View map »


Telephone: 302-831-2204
Website »

More information

Relax and unwind after a long day with the Museum’s popular Happy Hour series. Enjoy live music on the terrace with friends or tour the galleries indoors. Special themed nights will be scheduled...

Cost: Museum galleries are open with free admission every Thursday from 4–8 pm

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
View map »


Website »

More information

The Milton Historical Society’s 2018 King Cole Cannery Celebrity Chef Cook-Off takes place on Thursday, September 27, 2018, from 5:30-8:00 p.m. at the Milton Fire Hall, 116 Front Street, Milton,...

Cost: $45 non-members and at the door; members $35 before September 25

Where:
Milton Fire Hall
116 Front Street
Milton, DE  19968
View map »


Sponsor: Milton Historical Society
Telephone: 302-684-1010
Contact Name: Kimberly Fabbri, PhD
Website »

More information

Timothy Barr paints with a heightened sense of the relationship between color and light, infusing natural images with a serene and meditative radiance. He creates fine oil paintings of the colorful...

Cost: free

Where:
Somerville Manning Gallery
Breck’s Mill, 2nd Floor
101 Stone Block Row
Greenville, DE  19807
View map »


Telephone: 302-652-0271
Contact Name: Rebecca Moore
Website »

More information

Take in the elegant sunsets aboard the Riverboat Queen on our Thursday Sunset Dinner Cruises! Start your weekend early dockside with this delicious BBQ on the River buffet, featuring options to...

Cost: $45 Adults $22.50 Children ages 3-12 Children under 3 FREE

Where:
Public Docks
Behind Iron Hill Brewery
Wilmington, DE  19801
View map »

More information

Each month, the DelArt Readers will select a book, collection of articles, or film with a creative slant. These boundary-crossing readings will provide opportunity to question, debate,...

Cost: Free

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
View map »


Website »

More information

Our final Cigars & Stars dinner of the 2018 season! Join us for a fabulous dinner, premium open bar, live music and cigars by Black Cat, all under the stars on our beautiful outdoor...

Cost: 125.00 per person, inclusive

Where:
Harry's Savoy Grill & Ballroom
2020 Naamans Road
Wilmington, DE  19810
View map »


Sponsor: Harry's Hospitality Group
Telephone: 130-247-53000
Contact Name: Judy Champion
Website »

More information

7:30 p.m. Gallery Talks | 8:00 p.m. Concerts Concerts on Kentmere presents chamber music performances by Pyxis Piano Quartet, the Museum’s ensemble in residence. During their 10th anniversary...

Cost: $30 Members, $35 Non-Members, $25 Students.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
View map »


Website »

More information

Dueling Pianos at Uptown! features a new duo of talented and entertaining pianists every month. Audience driven so it's never the same show twice! Buy Tickets Here!  http://bit.ly/2LfcYtC  

Cost: $18-$23

Where:
Uptown! Knauer Performing Arts Center
226 N High Street
West Chester, PA  19380
View map »


Website »

More information

By Peter Shaffer Directed by Steve Tague. Enlarge! Enliven! Enlighten! Lettice is a vivacious tour guide at a rather ho-hum historical manor, who grabs and keeps tourists’ attention with...

Cost: 15-32

Where:
Studio Theatre, Roselle Center for the Arts
110 Orchard Rd.
Newark, DE  19716
View map »


Telephone: 302-831-2204
Website »

More information

Show More...
Show Less...

Established Color, an exhibition of vibrant still life paintings by Thomas Del Porte, will be on view in the Mezzanine Gallery from September 7-28, 2018. Del Porte received a 2018 Fellowship in...

Cost: Free

Where:
Mezzanine Gallery in Carvel Building
820 N. French St.
2nd Floor
Wilmington, DE  19801
View map »


Sponsor: Delaware Division of the Arts
Telephone: 302-577-8278
Contact Name: Roxanne Stanulis
Website »

More information

Have you ever pondered the genius behind the invention of the s’more, or wondered how anyone could survive a camping trip without bug spray and quick-dry fabrics?  Happy Campers! has answers for...

Cost: members free, included with admission

Where:
Winterthur Museum, Garden & Library
5105 Kennet Pike
Wilmington, DE  19807
View map »


Telephone: 800-448-3883
Contact Name: Information and Tours
Website »

More information

Forgeries—false works claiming to be genuine—aren’t expected to have much worth. As such, it may be surprising to learn that items once deemed worthless frauds and illegal acts can serve as...

Cost: Free

Where:
University of Delaware's Morris Library
181 S. College Ave.
Special Collections Gallery
Newark, DE  19717
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

Husband and wife painters, Kirk McBride and Lynne Lockhart exhibit over 40 new paintings in a two-person show. Lynne is known for her expressive yet anatomically accurate oil paintings of animals...

Cost: free

Where:
The Station Gallery
3922 Kennett Pike
Greenville, DE  19807
View map »


Telephone: 302-654-8638
Website »

More information

In 2017, the Delaware Art Museum received 13 works of art previously on display in the Hotel du Pont in downtown Wilmington. The gift included watercolors by Andrew Wyeth and oil paintings by N.C....

Cost: Free for members; Included in Museum Admission charge for non-members.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilminton, DE  19806
View map »

More information

The intimate vision of each artist—a mingling of reality and invention—blends the natural world with abstract shapes. Whether in luminous or subdued colors, these forms conjure up a cityscape...

Cost: Free with Museum admission.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19350
View map »


Website »

More information

A needle's eye in a pond, a Greek temple in the garden, an Ottoman tent sitting on a hill—these are just a few of the inspirations for our upcoming, first-ever outdoor exhibition Follies:...

Cost: Included with general admission ($5-20)

Where:
Winterthur Museum, Garden & Library
5105 Kennett Pike
Wilmington, DE  19807
View map »


Sponsor: Winterthur Museum, Garden & Library
Telephone: 800.448.3883
Contact Name: Information and Tours
Website »

More information

The Delaware Art Museum commissioned a project by New York-based artist Hank Willis Thomas which explores identity, history, and the actions motivating contemporary society. Thomas will interpret...

Cost: Free with Museum admission.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
View map »


Website »

More information

Glory of Stories introduces young visitors to art and the Museum through a story reading followed by an interactive tour of relevant works of art and a studio art project. This program encourages...

Cost: Free for Members, $5 per child and one adult free for Non-Members

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilminton , DE  19806
View map »


Sponsor: Delaware Art Museum

More information

Glory of Stories introduces young visitors to art and the Museum through a story reading followed by an interactive tour of relevant works of art and a studio art project. This program encourages...

Cost: Free to Members, $5 per child and one adult free for Non-Members

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
View map »

More information

Schedule a private group tour followed by lunch or dinner with a historic, revolutionary war era presentation.* Ideal for conferences, corporate meetings, special interest groups. $25 per...

Cost: $25–$45

Where:
The University and Whist Club
805 N Broom St
Wilmington, DE  19806
View map »


Sponsor: The University and Whist Club
Telephone: 302-658-5125
Contact Name: Stacey Inglis
Website »

More information

In recent years, the Arctic has occupied a central place in urgent climate change discussions. However, the Indigenous peoples of the region have long understood the need to respect an...

Cost: Free

Where:
Old College Gallery
18 East Main St.
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

Since the early 20th century, abstract art has prompted audiences to consider how the materials, shapes and subjects found within an artwork form the viewer’s response to it. Abstract art...

Cost: Free

Where:
University of Delaware's Mechanical Hall
30 North College Ave.
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

Self-educated mineralogist George F. Kunz assembled several renowned mineral collections throughout his lifetime. This exhibition highlights the last of his assembled collections, purchased by...

Cost: Free

Where:
University of Delaware's Mineralogical Museum
225 Academy Street
Penny Hall
Newark, DE  19716
View map »


Sponsor: University of Delaware Library, Museums & Press
Website »

More information

MAB offers high quality and affordable ballet training for ages 4 - 18 and Adult Ballet.  MAB is now offering classes in Tap and Jazz.  Classes begin Tuesday, September 4, 2018.   For more...

Cost: see website

Where:
Mid Atlantic Ballet
506 Interchange Blvd
Middletown, DE  19711
View map »


Sponsor: Mid Atlantic Ballet
Telephone: 302-266-6362
Website »

More information

LURAY PRODUCTIONS NEW YEARS EVE Monday, December 31, 2018            7:30 PM - Midnight Minquadale Memorial Hall 129 East...

Cost: 70-80

Where:
Minquadale Memorial Hall
129 East Hazeldell Avenue
New Castle, DE  19720
View map »


Sponsor: Luray Productions
Telephone: 302-559-0607
Contact Name: Lois Lipton Parker
Website »

More information

By Conor McPherson Directed by Ben Barnes  “Sharky” Harkin has returned to Dublin to gather with his brother and friends for a whisky-soaked Christmas Eve of companionship and poker.  When...

Cost: 15-32

Where:
Thompson Theatre, Roselle Center for the Arts
110 Orchard Rd.
Newark, DE  19716
View map »


Telephone: 302-831-2204
Website »

More information

September 28th at 5:30pm, Canine Training Workshop ATTENTION DOG OWNERS! Would you like tips on teaching and reinforcing basic obedience to your dog? Do you have any questions regarding your...

Cost: Free

Where:
Outside the Brandywine Zoo Education Building
1001 N Park Dr
Wilmington, DE  19802
View map »


Sponsor: Brandywine Zoo AAZK Chapter
Contact Name: Katlyn Muse
Website »

More information

Timothy Barr paints with a heightened sense of the relationship between color and light, infusing natural images with a serene and meditative radiance. He creates fine oil paintings of the colorful...

Cost: free

Where:
Somerville Manning Gallery
Breck’s Mill, 2nd Floor
101 Stone Block Row
Greenville, DE  19807
View map »


Telephone: 302-652-0271
Contact Name: Rebecca Moore
Website »

More information

After a decade, the Tilton Mansion Preservation Society, Inc., Medical Society of Delaware and the University and Whist Club came together to bring back this prestigious award gala, in 2017. The...

Cost: $120/person

Where:
The University and Whist Club
805 N. Broom St.
Wilmington, DE  19806
View map »


Sponsor: Tilton Mansion Preservation Society
Telephone: 302-658-5125
Contact Name: Stacey Inglis
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Count Manfredo di San Bonifaico will immerse you in an authentic Tuscan food and wine experience. Journey through over 1000 years of family history in winemaking as you taste all five of his...

Cost: $95.00

Where:
The Clubhouse at Baywood
32267 Clubhouse Way
Millsboro, DE  19966
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Sponsor: Creative Coastal Connections Corp.
Telephone: 302-245-4262
Contact Name: Stacy LaMotta

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NspireD, LLC proudly presents the KALEIDOSCOPE Survivors Ball: Celebrating the Beauty of Broken Pieces. This event is for women living with all types of cancer as well as caregivers, family,...

Cost: $50 before 8/31 & $65 until 9/15

Where:
DoubleTree Hotel
4727 Concord Pike
Unit 525
Wilmington, DE  19803
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Sponsor: NspireD, LLC
Telephone: 610-812-9997
Contact Name: Nicolle D. Surratte
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Better Than Bacon performs in completely unscripted improvisational games, which are all driven by YOUR suggestions and interactions. Every word and every action is completely made up...

Cost: $15

Where:
Uptown! Knauer Performing Arts Center
226 N High Street
West Chester, PA  19380
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By Peter Shaffer Directed by Steve Tague. Enlarge! Enliven! Enlighten! Lettice is a vivacious tour guide at a rather ho-hum historical manor, who grabs and keeps tourists’ attention with...

Cost: 15-32

Where:
Studio Theatre, Roselle Center for the Arts
110 Orchard Rd.
Newark, DE  19716
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Telephone: 302-831-2204
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Have you ever pondered the genius behind the invention of the s’more, or wondered how anyone could survive a camping trip without bug spray and quick-dry fabrics?  Happy Campers! has answers for...

Cost: members free, included with admission

Where:
Winterthur Museum, Garden & Library
5105 Kennet Pike
Wilmington, DE  19807
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Telephone: 800-448-3883
Contact Name: Information and Tours
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Grab your cape and lace up your running shoes! The 1st Annual Asperger's Alliance Superhero Dash & Autism Resource Event is Saturday, September 28, 2018. The Superhero Dash is a family...

Cost: Walk/Run $25/$20 Autism Event Free

Where:
Glasgow Park
2275 Pulaski Highway
Newark, DE  19702
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Sponsor: Asperger's Alliance
Telephone: (302)285-9624
Contact Name: Rebecca Clark
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Husband and wife painters, Kirk McBride and Lynne Lockhart exhibit over 40 new paintings in a two-person show. Lynne is known for her expressive yet anatomically accurate oil paintings of animals...

Cost: free

Where:
The Station Gallery
3922 Kennett Pike
Greenville, DE  19807
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Telephone: 302-654-8638
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The Delaware Art Museum commissioned a project by New York-based artist Hank Willis Thomas which explores identity, history, and the actions motivating contemporary society. Thomas will interpret...

Cost: Free with Museum admission.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
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In 2017, the Delaware Art Museum received 13 works of art previously on display in the Hotel du Pont in downtown Wilmington. The gift included watercolors by Andrew Wyeth and oil paintings by N.C....

Cost: Free for members; Included in Museum Admission charge for non-members.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilminton, DE  19806
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The intimate vision of each artist—a mingling of reality and invention—blends the natural world with abstract shapes. Whether in luminous or subdued colors, these forms conjure up a cityscape...

Cost: Free with Museum admission.

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19350
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EGYPTIAN FESTIVAL Please join us for our annual Egyptian Festival at St. Mary Coptic Orthodox Church of Delaware from September 29 to September 30. While you’re trying the Egyptian...

Cost: FREE

Where:
St. Mary Coptic Orthodox Church
1644 Otts Chapel Road
Newark, DE  19702
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A needle's eye in a pond, a Greek temple in the garden, an Ottoman tent sitting on a hill—these are just a few of the inspirations for our upcoming, first-ever outdoor exhibition Follies:...

Cost: Included with general admission ($5-20)

Where:
Winterthur Museum, Garden & Library
5105 Kennett Pike
Wilmington, DE  19807
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Sponsor: Winterthur Museum, Garden & Library
Telephone: 800.448.3883
Contact Name: Information and Tours
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September 29 (Saturday) Iron Hill Powwow This event is to highlight native people (First Nations) that live in the tri-state area by having them share their crafts, dances, songs, games, and...

Cost: $5-adults, $4-students & kids, DAS-$2, kids under 4-Free, Scouts in uniform-Free

Where:
Iron Hill Museum
1355 Old Baltimore Pike
Newark, DE  19702
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Sponsor: Delaware Academy of Science, Inc.
Telephone: 130-236-85703
Contact Name: Maureen Zieber
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Schedule a private group tour followed by lunch or dinner with a historic, revolutionary war era presentation.* Ideal for conferences, corporate meetings, special interest groups. $25 per...

Cost: $25–$45

Where:
The University and Whist Club
805 N Broom St
Wilmington, DE  19806
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Sponsor: The University and Whist Club
Telephone: 302-658-5125
Contact Name: Stacey Inglis
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In partnership with the Korean American Association of Delaware  Participate in a cultural exchange with activities and performances exploring both traditional and modern Korean culture and...

Cost: Free

Where:
Delaware Art Museum
2301 Kentmere Parkway
Wilmington, DE  19806
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An indulgent food, wine and music experience that will ignite your senses!  Join us as we celebrate the very best of South Coastal Delaware with 20 top restaurants providing food paired with...

Cost: $75 $85 After September 4 $90 at door

Where:
Independence Clubhouse
23767 Samuel Adams Circle
Millsboro, DE  19966
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Sponsor: Creative Coastal Connections Corp.
Telephone: 302-245-4262
Contact Name: Stacy LaMotta
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Self-educated mineralogist George F. Kunz assembled several renowned mineral collections throughout his lifetime. This exhibition highlights the last of his assembled collections, purchased by...

Cost: Free

Where:
University of Delaware's Mineralogical Museum
225 Academy Street
Penny Hall
Newark, DE  19716
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Sponsor: University of Delaware Library, Museums & Press
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In recent years, the Arctic has occupied a central place in urgent climate change discussions. However, the Indigenous peoples of the region have long understood the need to respect an...

Cost: Free

Where:
Old College Gallery
18 East Main St.
Newark, DE  19716
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Sponsor: University of Delaware Library, Museums & Press
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Since the early 20th century, abstract art has prompted audiences to consider how the materials, shapes and subjects found within an artwork form the viewer’s response to it. Abstract art...

Cost: Free

Where:
University of Delaware's Mechanical Hall
30 North College Ave.
Newark, DE  19716
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Sponsor: University of Delaware Library, Museums & Press
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MAB offers high quality and affordable ballet training for ages 4 - 18 and Adult Ballet.  MAB is now offering classes in Tap and Jazz.  Classes begin Tuesday, September 4, 2018.   For more...

Cost: see website

Where:
Mid Atlantic Ballet
506 Interchange Blvd
Middletown, DE  19711
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Sponsor: Mid Atlantic Ballet
Telephone: 302-266-6362
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LURAY PRODUCTIONS NEW YEARS EVE Monday, December 31, 2018            7:30 PM - Midnight Minquadale Memorial Hall 129 East...

Cost: 70-80

Where:
Minquadale Memorial Hall
129 East Hazeldell Avenue
New Castle, DE  19720
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Sponsor: Luray Productions
Telephone: 302-559-0607
Contact Name: Lois Lipton Parker
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By Conor McPherson Directed by Ben Barnes  “Sharky” Harkin has returned to Dublin to gather with his brother and friends for a whisky-soaked Christmas Eve of companionship and poker.  When...

Cost: 15-32

Where:
Thompson Theatre, Roselle Center for the Arts
110 Orchard Rd.
Newark, DE  19716
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Telephone: 302-831-2204
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Timothy Barr paints with a heightened sense of the relationship between color and light, infusing natural images with a serene and meditative radiance. He creates fine oil paintings of the colorful...

Cost: free

Where:
Somerville Manning Gallery
Breck’s Mill, 2nd Floor
101 Stone Block Row
Greenville, DE  19807
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Telephone: 302-652-0271
Contact Name: Rebecca Moore
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FORGED OF NATURE FASHION FUNDRAISER Saturday, September 29, 7 - 10 PM Enjoy a performance runway show presented by Ellen Durkan of Iron Maiden Forge and Shannah Warwick of BlckBts. Durkan...

Cost: $65 - $100

Where:
The Delaware Contemporary
200 South Madison Street
Wilmington, DE  19801
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By Peter Shaffer Directed by Steve Tague. Enlarge! Enliven! Enlighten! Lettice is a vivacious tour guide at a rather ho-hum historical manor, who grabs and keeps tourists’ attention with...

Cost: 15-32

Where:
Studio Theatre, Roselle Center for the Arts
110 Orchard Rd.
Newark, DE  19716
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Telephone: 302-831-2204
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Best known for his starring role on the NBC comedy series “Undateable” and the Netflix special “Man on Fire,” Chris D’Elia brings his “Follow The Leader Tour” to The Event Center at...

Cost: $39-$59

Where:
SugarHouse Casino
1001 N. Delaware Ave
Philadelphia, PA  19125
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Zahra Noor Presents A Night of North African & Middle Eastern Dance ​ Starring Nada El Masriya Saturday, September 29th, 2018 Doors: 8 p.m. Show: 8:30 p.m. ​ Location:...

Cost: $25

Where:
Wilmington Friends School Theatre
101 School Road
Wilmington, DE  19803
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